How long do I have to wait? CPAP Forums (2024)

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    • Kipper

      Just looking

      • Oct 2007
      • 52

      #1

      How long do I have to wait? CPAP Forums (3)How long do I have to wait?

      I have been diagnosed with OSA, and saw the specialist on 3 October 07, when he said I would benefit from a CPAP machine.
      How long is the usual waiting period before the machine is supplied (UK NHS)?

      regards

      Kipper

      Don't mind me, I'm just going to have a kip in the corner.

      Tags:None

        • Joe McManus

          PAP Legend

          • Jun 2007
          • 475

          #2

          Hi kipper and welcome to the forums!

          According to fairly recent statistics, you could be between two months and two years away from your machine:

          CPAP.co.uk Blog, Learn from our expert writers and staff about OSA

          http://blog.cpap.co.uk/2007/09/uk-worst-access-to-diagnosis-and-treatment-of-patients-with-suspected-sleep-apnea

          Learn more about the world of Sleep Disordered Breathing advice and treatments with our range of insightful and educational blogs.

          But it's hard to say because it really depends on the amount of funding your local NHS/PCT has allocated to sleep apnoea treatment. This varies a lot so it's hard to tell. Those figures aren't published either so all you can do to find out is chase them for an ETA. At the very least they should be able to tell your place in the queue.

          I've heard people writing their MP which actually got things moving for them. Making some noise (ringing the hospital pretending you're dying) might help (though it may push others down the queue).

          Comment

          • Kipper

            Just looking

            • Oct 2007
            • 52

            #3

            Thanks Joe. I am being Mr Difficult to myself, as the hospital I went to is some way from where I live, but the specialist has transferred me to the local hospital (which I can see from my house). I think, by requesting this, I have put myself at the back of the queue anyway.
            My main problem is that DVLA have taken my driving licence away, and I have to drive for work. Employer happy to accomodate me for the time being (working locally and on foot) but that cannot continue indefinately.

            Comment

            • Joe McManus

              PAP Legend

              • Jun 2007
              • 475

              #4

              If you are desperate for one, you can try and do what Stuart did, described in this thread: http://forums.cpap.co.uk/showthread.php?t=88 or visit our prize sponsor: http://www.cpap-europe.com and buy outright privately.

              I'd ask about your queue position first though. It may turn out to be favourable, who knows.

              Comment

              • JackTheSnorer

                Just looking

                • Jul 2007
                • 109

                #5

                Where are you based, Kipper?

                Comment

                • MoutheBreather

                  Just looking

                  • Jun 2007
                  • 88

                  #6

                  Welcome, Kipper!

                  Originally posted by KipperView Post

                  I have been diagnosed with OSA, and saw the specialist on 3 October 07, when he said I would benefit from a CPAP machine.

                  He said you would, but did he actually arrange for you to have one? With them being so busy, I'd triple check that first! It wouldn't be the first time where a patient was 'forgotten' and was left waiting forever.

                  Fingers crossed you get it soon so you can join the club officially How long do I have to wait? CPAP Forums (10)

                  If you can read this...
                  ...at least you seem to be getting enough sleep to stay awake and alert! How long do I have to wait? CPAP Forums (11)

                  Comment

                  • Kipper

                    Just looking

                    • Oct 2007
                    • 52

                    #7

                    Thanks folks.

                    I first went to the QMC at Nottingham, but they have transfered me to Kings Mill at Mansfield. I know the letter was sent, as I have checked with QMC. Main problem seems to be getting through to the right people when phoning, my pay as you go gets a hammering when waiting in a queue!
                    May be worth going private, to speed it up, but will need some plastic healthier than me. How long do I have to wait? CPAP Forums (13)

                    Comment

                    • Kipper

                      Just looking

                      • Oct 2007
                      • 52

                      #8

                      I heard from the hospital today. How long do I have to wait? CPAP Forums (15)
                      I am on the waiting list. How long do I have to wait? CPAP Forums (16)
                      There are six people in front of me.How long do I have to wait? CPAP Forums (17)
                      My appointment should be about the third week of December. How long do I have to wait? CPAP Forums (18)

                      Well, at least I am on the right path, so here's hoping for a good Christmas.How long do I have to wait? CPAP Forums (19)

                      Comment

                      • Joe McManus

                        PAP Legend

                        • Jun 2007
                        • 475

                        #9

                        Two months, that's not too bad at all. Just hope it is how they say it is and that you'll cope alright in the meanwhile.

                        Getting some good sleep after a heavy Christmas meal must be an appealing thought!

                        Comment

                        • katiemcewan

                          Just looking

                          • Jul 2007
                          • 37

                          #10

                          Great news! That's not too bad indeed.

                          Next time you speak to them, perhaps you can find out what sort of equipment they have lined up for you. That way you can find out all about it in advance.

                          Do you remember your Apnea Index from the diagnosis?

                          Comment

                          • Kipper

                            Just looking

                            • Oct 2007
                            • 52

                            #11

                            Yippee-ish

                            I have got a date of Nov 30th, to collect a machine for a week's trial. This will be a CPAP with patient analyser incorporated in it. After a weeks use, I have to take it back and the data captured will be used to calibrate MY machine.
                            Hopefully this will do the trick.How long do I have to wait? CPAP Forums (23)

                            Comment

                            • Joe McManus

                              PAP Legend

                              • Jun 2007
                              • 475

                              #12

                              Good to hear some progress. It'll be worth the wait!

                              Comment

                              • Joe McManus

                                PAP Legend

                                • Jun 2007
                                • 475

                                #13

                                Hey Kipper, did you get your machine last week?

                                Comment

                                • Kipper

                                  Just looking

                                  • Oct 2007
                                  • 52

                                  #14

                                  Hi Folks,

                                  First the good news - I picked up the CPAP machine on Friday 30/11.

                                  The bad news - I developed a cold the next day!

                                  The best news - even though I was unable to use the machine everyday of the week's trial, with bulk supplies of Vick rub and nasal spray, I did enough to show that it worked. The graphs were a joy to behold!

                                  I now have my own NHS machine - a DeVillbiss with ResMed nose mask - set to 10 (PSI?).

                                  Now to get my driving licence back????

                                  Comment

                                  • puffin

                                    Just looking

                                    • Oct 2007
                                    • 466

                                    #15

                                    Hi Nuneatonman37 welcome to the forum.

                                    Regards and Good Luck, Barry

                                    Start Weight 167.3 kg 09/05/08 Op. Date 08/06/08 163.9 kg NOW 118.4 kg Lost 48.9 kg or 7 Stone 10lbs 58% of Est. Total Loss, BMI was 50 now 35.3How long do I have to wait? CPAP Forums (28)

                                    Comment

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